Current Child Count

  • HOGAR DE AMOR I: 11 babies
  • HOGAR DE AMOR II: 6 boys
  • HOGAR DE AMOR III: 8 girls
Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts

Monday, August 3, 2015

Successful Surgery


Here is K immediately after surgery. He is stable and doing well. He will stay sedated most of the day and will remain in ICU for a few days with only short visits. Thank you so much for all of your prayers! One of our volunteers got to be in the surgery the whole time and got to listen to his heart when they were finished (she is a med student) and says there is no more murmur!!!! We are praising God for his faithfulness!!

Out of Surgery

K (or C), depending on which spelling of his name you look at, is out of surgery.  We will let you know more and post some pictures as soon as we know more and someone can visit!!  Thank you for praying!!!!

Sunday, August 2, 2015

Waiting for Surgery

As I type, I am currently sitting on a hospital bed with the sweetest little 4 year old boy I have ever met. K is VERY happily playing on Kirsten's iPad driving cars, building with virtual Legos, and playing peek-a-boo with animals! I know I'm a horrible babysitter, but there's only so much you can do after 4 full days in a hospital room with a seemingly, perfectly healthy little boy. To look at him and play with him, you wouldn't know that anything is wrong. But tomorrow morning (hopefully) K will have open heart surgery to repair 2 holes in the ventricular septum of his heart. This surgery was supposed to happen on Friday (as many of you already know), but it was delayed because there weren't any beds in ICU for him to go to after it was completed. We are really hoping it can happen this time. We are all getting a little tired of being cooped up in a small hospital room (especially K). He is being such a trooper though. He is happy and playing with his toys and always ready with a hug!!
The hospital where K will have his surgery.
Yesterday I was greeted by him running down this ramp with open arms! He brings such joy to all of us at Casa de Amor!! Please join us in praying for him over the next several days that his surgery would be a complete success and that his recovery will be quick and with as little pain as possible. Pray for peace for his sweet spirit as well. He is a very sensitive little guy and is a bit nervous about tomorrow. Thanks for your partnership with him! We will post an update as soon as we have one!

Monday, July 27, 2015

Surgery Update

Surgery Postponed :(

Thank you all for praying for us and the surgeries this month.  Unfortunately, I's surgery had to be postponed because he caught a cold and was running a fever the day he was supposed to have his.  It has been postponed until October, but we are praying that it will be able to happen sooner than that.  We received all of the money we needed for his surgery, so we will save that for whenever it actually happens!!  Thank you so much for your donations this month!

K's heart surgery is still scheduled for later this week.  He goes into the hospital on Wednesday, but the surgery isn't until Thursday or Friday.  We will keep you updated on how that goes!

Sunday, July 19, 2015

Urgent Need

Baby I waiting to have surgery to repair his cleft lip this coming week (we think).

We have an urgent need of $20,000 by the end of July!  The summer has been a little slow with funds coming in and we need money for salaries and 2 surgeries that are coming up soon.  We will keep you updated on how this is going with a thermometer like this one on the webpage (www.casadeamor.org).  Thank you so much for any help you can give.  To donate, click Here.

Monday, July 28, 2014

Baby E post-op!

Baby E is home since Friday and doing well!! He has had his moments of not sleeping well and being in pain, but overall he is doing better and his cough is going away.



Thanks again to everyone who made this possible!


I'm grateful to our volunteer Hannah for caring for him at night since he was released from the hospital!



Thursday, July 24, 2014

Reflux Surgery Update

As I wrote in this post, baby E has been diagnosed with severe reflux and needed surgery urgently. He entered the OR at 8:10 yesterday morning and the surgeon came out with a report at 10:50am. The surgery went well!

E was sent to a room at 3:30pm and slept alright last night, but this morning was in a lot of pain again.

He must be doing pretty well, because even though the surgeon said he thought he would be hospitalized 3 days, he might be released tomorrow, Friday!

Thanks so much to everyone who is praying...and giving!

The current donation count stands at $2,114, from 10 donors living in 4 different countries (US, UK, NZ, and Denmark).

Tuesday, July 22, 2014

Surgery. (Yes, another one!)

Thankfully our sweet baby D is doing marvelously after open heart surgery in May!

 Here are a couple recent pictures:





We're in the thick of surgery prep again though, this time for baby E (10 1/2 months). Since his arrival in February, he gets sick, then sicker. After many tests and a hospital stay, he comes home - sick. Then he gets sicker. And sicker! Back to the hospital, home sick. Repeat!


 A rare smile!

He has been diagnosed with several different infections this year, but mainly develops respiratory infections. Cold and cough type viruses are very common both in Cochabamba (3rd most polluted city in South America) and the Baby Home (the babies and staff pass colds around), but E seemed to have trouble to an unusual extent.

It has been so frustrating for our staff and volunteers doing their best, around the clock, to help this baby, and see him still suffering!


The "pre-haircut E"!

Finally, after numerous visits to many doctors, including two of the best pediatricians in town, a special study was done and E was diagnosed with severe acid reflux. He doesn't throw up to a large degree, but it's almost worse that he doesn't! The milk we give him goes back into his right lung every time he eats.

Earlier this month, we were told that he needed the surgery as soon as he was somewhat well again, preferably within a month's time. At that point he was receiving IV meds for pneumonia every 12 hours and STILL not improving. Finally, it just became too urgent, as his esophagus is compromised due to the terrible reflux.

Baby E. will be admitted to the best clinic in our city TOMORROW morning, Wednesday, July 24, and operated on an hour later.

Please pray for wisdom for the doctors, for peace and comfort for baby E., compassion and patience for those staying with him night and day, and for the rest of the funds to come in!!

Maria, our health coordinator, has estimated needing $3,000 to cover the surgery, even with the surgeon donating his time. Since posting the need on our Facebook page, $875 has come in through 3 donors (sending from Denmark, Ireland, and the US) via paypal. That's a great start but we need more!

Please let us know if you have any questions!




Tuesday, May 27, 2014

Successful Surgery!!!!!

We have been supremely blessed with generous financial gifts, an excellent surgeon, and timely visits by dedicated medical volunteers.
The reward is that this sweet baby...
...has a fully repaired heart!!
According to the surgeon, this was his first and LAST open heart surgery. Yay!!!
THANK YOU to everyone who has prayed, given, and volunteered by D's bedside.
Elizabeth, a nursing student from Texas, has been here for nearly 3 weeks pouring her life into baby D's. Read her wonderful blog updates here
Katrina from the Canada, US, and Bolivia (she lived here for 10 years as a missionary kid), spent much of her recent two week visit assisting with D and other medically related errands at Casa de Amor.
Melanie, a pediatric CVICU nurse from Texas, will be here in a few days to take up the baton!
The Booher family from Oregon, our enthusiastic Casa de Amor IV family, will take care of D once he is released from the hospital during this critical post-op recovery period.
Casa de Amor is so blessed!!

Saturday, May 17, 2014

We have a surgery date!!!




WE HAVE A SURGERY DATE!!!

Actually, a new surgery date.

It was heartbreaking to get so close to D’s original admittal for surgery (May 7) and have him get sick—very sick—only 3 days before. Instead of surgery, he was re-admitted to the private pediatric hospital with a respiratory infection and coronary heart disease.

We bailed him out one week later with a nasty cough and more meds, but he’s been doing very well under Elizabeth (and now Katrina Culmer’s) diligent care.

In fact, many different people have taken turns caring for baby D around the clock the past several months, often in total isolation from the other babies.

Kaley
Linnea
Lindsey
Elizabeth
Katrina
(If I’m forgetting anyone, let me know!)

Tia Maria has also given her all these past months.

Thanks to some great teamwork from Elizabeth, Katrina, and our favorite pediatrician, our new surgery date is May 22, with hospital admittance on May 19.

WE NEED YOUR HELP! 

·        Prayer Support! We’re going to be nervous until he’s admitted. The city is full of viruses right now and it’s hard to stay free of them.

·        Financial Support! We have all the money we need for the surgery deposit (praise the Lord!), but need a cushion for medications, post-op tests, consultations, etc. Our current health funds are depleted after 3 months of constant illness. If 10 more people gave $100 each, we would be in a much better position as we move forward.

·        Local friends: take a turn! We have never had an inpatient at Clinica Belga (the heart hospital) and have learned that someone must be with our little patient around the clock. Our current volunteers have busy days (and nights) and our staff is fully occupied with all of our other babies. I will be creating a schedule soon - please write or comment here if you can help!! 

For those of you who have been waiting for information on donating blood, we think that’s taken care of for now! The doctors have changed their minds and say we only need 1 or 2 donors. We can easily reach that goal amongst our staff. More helpful at this point would be volunteers to stay at Daniel’s bedside before and after the surgery.

Thank you for your prayers and support! We are nearing the goal of a healthy baby! :)

Monday, May 5, 2014

Baby D is Sick.

As we count down the days to admission (2) and heart surgery (4), baby D has gotten sick again.

Yesterday he woke up with discharge clouding his eyes, and as the volunteer and I talked about him, he coughing hoarsely.

Oh, the disappointment! This morning I sensed defeat in the voice of Maria, our over-worked health coordinator. The doctor gave him three medications and ordered lab work.

Maria has been unable to reach the heart surgeon to learn what happens now.

Please pray for God's perfect timing in all of this!!!


In other news, I just did a fresh tally of the finances that have come in specifically for this surgery.

Some interesting stats about the donations:

  • ELEVEN separate donors (some have given multiple times)
  • SIX different countries: US, Canada, Australia, New Zealand, Denmark, and United Kingdom
  • EIGHT donors are former volunteers, and ONE donor will volunteer later this year
  • Average donation amount per donor: $400! 

Our current total (minus paypal fees) is approximately $4350. Our original goal was $4000, readjusted to $6000 to allow for more heart exams, lab work, post-op medication and consultations, and any other complications needing immediate funds.

Thank you to everyone who has given so sacrificially! I hope to report back with good news SOON.

Tuesday, April 29, 2014

Baby D's Heart Surgery!

 
For the first posts on Baby D and his condition, see here and here.


WE HAVE A SURGERY DATE!!!

Baby D will be admitted to the heart clinic on Wednesday, May 7, for heart surgery on May 9! He is still about a pound shy of where he should be, but is currently healthy and progressing developmentally. Due to the chronic ear infections he has suffered through, he has been scheduled for auditory testing. 

PRAY THAT HE STAYS HEALTHY!!

We are so grateful for the dedication of volunteer Linnea to care for D around the clock and get him healthy and strong. She leaves Bolivia tomorrow morning to return to Canada, but return volunteer Lindsey is stepping in to fill the gap.


 Baby D with Volunteer Coordinator Elena
April 28, 2014


Last week when I sat down with our health coordinator, I realized how many details are involved. Maria had just spent the morning on 3 tests for the baby costing over $100. If that doesn’t sound like much, it’s a lot here in Bolivia. One of the things she found out is that we will need MANY blood donors. (An estimated 16?!)

Friends and volunteers in Cochabamba who are willing to donate blood: stay tuned for more details!

On the legal front, since baby D is a relatively new arrival for Casa de Amor, his official papers for his “shelter” in Casa de Amor had not yet been issued from the minors court. That’s normal but in this case we needed everything in line before the surgery. (By law, we have 72 hours to request legal shelter for each and every new arrival, but social services and the court can take months to process the papers.) Our social workers (Rosa and our new staff member Evelin) worked hard to get this loose end tied up so that we could present a report to the court with all the details of the surgery requesting permission to proceed. We expect a positive reply—this is more of a formality before embarking on major medical treatment.

We are very blessed to have two medical-minded volunteers arriving soon, our repeat volunteer "Canadian Katrina" and a repeat visitor to Bolivia, Elizabeth from Texas. They will be a huge help with all the special care baby D will need, and also our medical staff as they keep up with all of the other babies.
Financially, a HUGE THANK YOU to the TEN different sponsors of baby D’s life-saving surgery!! Every bit of what has been donated for baby D is going to baby D. Yesterday I transferred the first $3,500 to Bolivia so that our accountant can access it on time. All of the staff is marveling at how quickly we are able to move forward with this surgery!
We do need more to be able to pay for his post-op medications, tests, consultations, and anything else that might come up. Click HERE for information on making donations to Casa de Amor/GOAL. 


In summary:
~ Pray for baby D’s continual health and consistent weight gain

~ Pray for a sufficient number of blood donors (enough donors will reduce the total surgery cost)

~ Pray that the proper legal backing comes through in time

~ Pray that enough money comes in to be able to cover any extra expenses


A few more pictures of our volunteer get-together a couple of nights ago, thanking Linnea for her service to Casa de Amor:


My house looked like a second baby home, with quite the room full of babies - four babies ages 6 1/2 to almost 8 months!

 So fun! All of these babies can sit to some degree now.


And finally, we would be very grateful for any special donations towards health expenses in general right now. One of our newest babies, little boy E, was hospitalized twice at two different hospitals in the month of April with various illnesses that he has probably had since his arrival.
We have spent MORE THAN $2,000 on medical bills alone the month of April.  
Much of that was due to hospitalizations, but also because of the continual sicknesses we’ve battled at the Baby Home. Obviously, this went way over budget, and follows behind another high medical expense month in March. The babies are finally doing better thanks to a united effort on the part of the staff and volunteers, but it’s made it hard to meet other expenses like staff salaries and utility bills, now due.

Click HERE to see how to give via check or paypal.



Thank you to all of our supporters! 
  

Sunday, April 6, 2014

Baby D Update

It's time for an update on Baby D!

First of all, his diagnosis is a VSD (Ventricular septal defect) - and most of the symptoms associated with that - and a PFO (Patent Foramen Ovale) .

Currently, he is on two medications indefinitely.

He has struggled with repeated respiratory infections, a common issue with heart babies. He narrowly escaped hospitalization last week thanks in part to a valiant effort by Casa de Amor staff and volunteers.

Baby D currently weighs 4.8 kilos but needs to weigh SIX kilos for his heart surgery to take place. Pray that he begins to tolerate more formula at each feeding!

From past surgeries, we know that a little one going through such an experience needs lot of extra TLC. It's also best if the least number of people possible are involved to provide the best continuity of care. That's why it was pretty neat when a nurse visitor to the Baby Home was captivated by our tiny Baby D and asked if she could change her plans and come back in May! (Read her blog post on falling in love with our baby here.)

NOW the trick will be getting D healthy enough and big enough by May for the surgery, plus coordinating with the doctors and Clinica Belga!

At least we won't be held up by lack of funding. As mentioned in my last blog post, we have been told to budget at least $13,000 for the surgery and post-op hospitalization and medications. Tia Maria, our health care coordinator, was able to obtain a pledge of 70% of the funding from a Catholic foundation in our city. That is an AMAZING portion towards the surgery!

Donations to cover the remaining 30% have come in from far and wide - Australia, Canada, and the US. All of the donations have been from current or former volunteers with the exception of one family who explained that they understand the costs involved as they raise their own "heart baby".

At this point, only about $1,300 is still needed to reach our goal (yes, Linnea, a little more came in since you asked me this morning)!!!

Little D is a much-loved baby!

PS - For a few recent pictures, see volunteer Linnea's blog post!

Thursday, March 13, 2014

Heart Surgery

Last month, we welcomed baby D to the Baby Home. It was obvious that he was very small and delayed for being four months old. He was closer to the size and developmental level of a newborn!



Our dedicated volunteers and health staff have poured extra attention into D, and he is slowly gaining weight and recovering from several illnesses. He is a sweet, generally quiet, little baby!

After several appointments with specialists, we learned more as to why D is not thriving. He has a heart defect that demands surgery as soon as possible. His life depends on it!

Throughout the years, Casa de Amor has received a number of babies who were found to have heart murmurs, and even one who needed two medications, but this will be the first time a defect is serious enough to warrant special intervention. 

We were in for a shock to hear how much this surgery will cost! Previous surgeries here in Bolivia, such as cleft lip or palate repairs, hernias, lazy eyes, etc., have cost us anywhere from 0 to several hundred dollars. This one is in a completely different ballpark!

The heart clinic told us to budget $12-13,000 for the heart surgery, plus more to cover any potential complications.

A substantial chunk of this amount is for the cardiologist. Once we are able to commit to a date for the surgery, we will know which pediatric cardiologist would be assigned to our baby, and could possibly negotiate a discount.

We trust that God brought us this precious baby for a reason, and that our team of supporters will be able to bless him with a life-changing surgery!

Please write Jennifer with any questions, or go directly to our support page for more information on giving.